I’ve been trying to remain calm today, however the conversation I had this morning at the local Dollar General store still bothers me. The lady at check out asked me if I wanted to donate my change to Autism. I told her I regularly donated and that my middle grandson has Asperger’s (of course that’s considered part of the Autism Spectrum – ASD now). Her response was “at least he’s high functioning”. WTH, she just assumes to know how he is and what he can do. How obtuse, if you’re going to ask for donations at least get familiar with what you asking for. Just because he is verbal and/or high functioning (genius level, etc) doesn’t mean that there’s not issues there.
Ever had one of those moments when you just zone out??? Well, try telling your child/grandchild to do something as simple as pick up the trash or put up your clothes or put your dirty cloths in the basket and have them look at you like your were from outer space and you asked them to fly. Actually, asking him to fly would make more sense at this point to him than a normal request.
Try getting them to calm down when they’ve completely lost it because of something they can’t do and they deem it’s important that they be able to do it. After you’ve dealt with a major meltdown (not a temper tantrum) then come to me and tell me “well at least he’s verbal”. Lady you don’t have a frigging clue so until you do it’s just better than you shut up and become educated.
When will people ever realize that just because our children/grandchildren are verbal – that doesn’t mean that many of the same issues aren’t still there.
Now I will step back off my soapbox. Those of you out there that deal with these issues daily will completely understand this post, the rest of you – do a little research and actually listen when someone tries to explain to you or you see it happening.
And, for those of you that have children that want to go to camp or that go to camp – does your child have to have his own “camp volunteer”? Even though he’s capable of bathing, eating and dressing himself on his own just because this is a disability 4H camp is requiring him to have an adult volunteer.
While I am extremely thankful that he can speak and is high functioning that doesn’t take the pain away from what he has to deal with and the frustration of not being able to “fix” it where he doesn’t have to deal with a lot of crap. That doesn’t take away the daily stress and havoc that it causes in his life and the issues that are raised as to what he can and can’t do.
Don’t dare to suggest punishment until you know what you are talking about!!!!!!!!!!!!!