I’ve been trying to remain calm today, however the conversation I had this morning at the local Dollar General store still bothers me. The lady at check out asked me if I wanted to donate my change to Autism. I told her I regularly donated and that my middle grandson has Asperger’s (of course that’s considered part of the Autism Spectrum – ASD now). Her response was “at least he’s high functioning”. WTH, she just assumes to know how he is and what he can do. How obtuse, if you’re going to ask for donations at least get familiar with what you asking for. Just because he is verbal and/or high functioning (genius level, etc) doesn’t mean that there’s not issues there.
Ever had one of those moments when you just zone out??? Well, try telling your child/grandchild to do something as simple as pick up the trash or put up your clothes or put your dirty cloths in the basket and have them look at you like your were from outer space and you asked them to fly. Actually, asking him to fly would make more sense at this point to him than a normal request.
Try getting them to calm down when they’ve completely lost it because of something they can’t do and they deem it’s important that they be able to do it. After you’ve dealt with a major meltdown (not a temper tantrum) then come to me and tell me “well at least he’s verbal”. Lady you don’t have a frigging clue so until you do it’s just better than you shut up and become educated.
When will people ever realize that just because our children/grandchildren are verbal – that doesn’t mean that many of the same issues aren’t still there.
Now I will step back off my soapbox. Those of you out there that deal with these issues daily will completely understand this post, the rest of you – do a little research and actually listen when someone tries to explain to you or you see it happening.
And, for those of you that have children that want to go to camp or that go to camp – does your child have to have his own “camp volunteer”? Even though he’s capable of bathing, eating and dressing himself on his own just because this is a disability 4H camp is requiring him to have an adult volunteer.
While I am extremely thankful that he can speak and is high functioning that doesn’t take the pain away from what he has to deal with and the frustration of not being able to “fix” it where he doesn’t have to deal with a lot of crap. That doesn’t take away the daily stress and havoc that it causes in his life and the issues that are raised as to what he can and can’t do.
Don’t dare to suggest punishment until you know what you are talking about!!!!!!!!!!!!!
I started this blogging journey in December 2013 thinking I wouldn’t make it through a couple of months. Here it is a year later and I’m still here. Some months have been pretty slow posting wise, not so much life being slow. As a family we’ve been through a lot this past year. Dealing with the bullying of my grandson in the spring and then with finally getting the diagnosis of Autism. He was diagnosed with Asperger’s Syndrome but due to the changes in the DSM-V he falls under Autism now.
Had a pretty quiet summer, got the pool up and working even with dealing with a leak in a new liner. Spent a lot of hours on the mower in the “back 40” from March through October. One of my favorite things to do outside. In the midst of all of this I started back to school, working on my Masters in Criminal Justice. It has been an interesting journey from May. Been on break with no classes since mid October but they start back next Monday, 5th. Transferred to Nova Southeastern in FL to finish. Pretty interesting class starting, all about Firearms and Ballistics and the other one on Forensic Science. Looking forward to these two.
Still hanging on to my insurance license, got too much time and money invested not to keep renewing it every two years and doing the continuing education. I am in the midst of working on my AFIS (Agriculture and Farm Insurance Specialist) designation, so I guess taking the third part of that course will be my continuing education this year, that and the Ethics class that is required.
Started by journey as a Jamberry Nail Wrap consultant in November. Funny thing, I’d never heard of them until August of last year when a Face Book friend had a Face Book party and then became a consultant. Wish I’d know about this company before. Pretty new, started in 2010 and growing fast. Check it out: http://www.eulasullivan.jamberrynails.net/ and anyone wanting info let me know. Cool nail wraps and get paid to have pretty nails. It’s only in the US and Canada right now.
Through all of this the last month has be trying on my health and dealing with blood pressure issues. I am hoping that things will settle down again when school starts back next week and one of the grandkids will be back in school. They have all been sick including the three year old. This crazy flu and respiratory stuff is nothing to mess with. If you are sick with this, go to the doctor, emergency room or something. Kids are dying from it, scary crap!!
If we could keep all the vehicles around here running it would be a miracle. Out of seven vehicles, three are down right now….OUCH that’s a lot of $$$$’s going to be going out the door.
This is about it for my crazy life. Striving to increase my blogging and writing in this new year and accomplishing much more along the way. With major home improvements looming on the near horizon it’s going to be a busy one.
Posted in Autism, children, Family, Farm, fun, grandchildren, Holidays, memories, RandomRamblings.., Time
Tagged anxiety, Family, farm, grandchildren, home, life, Random Ramblings, wishes
The tree was decorated with the help of the three year old grandson. He was never happy with it, kept saying it needed more lights and things. So of course we kept adding and adding, but he was happy.
He said he wanted a winter wonderland with my Christmas houses, but of course he had to add a train. His big brother put his train up for him. I thought he was going to add some of his Thomas the Train trains to it but he didn’t.
On Friday after we got the decorations done it all caught up with me and I was sick. Blood pressure up very high for the first time in about seven years and on Saturday morning – it was bad- I spent 1/2 day in the local Emergency Room. Guess I have to deal with this crap again, and with classes starting back in a couple of weeks it couldn’t have happened at a worse time.
Even with the trials of Autism/Asperger’s being around, I am so thankful for my grandchildren to be as healthy as they are. I can always look around and see others that are not doing as well. Sometimes when the meltdowns hit we neglect to see the positives. I think that we sometimes let ourselves get overloaded with what is going on in our lives and forget that we have it so much better than a lot of others.
Merry Christmas to all!!
Posted in Aspergers, Autism, children, Christmas, Family, Farm, fun, trains
Tagged anxiety, Aspergers, autism, children, Christmas, dreams, Family, farm, fun stuff, grandchildren, Holidays
Today, let’s bump up the contrast for a bold take on triumph.
This is from a few years ago when my son wrecked his PT Cruiser and it caught fire.
Before changes in contrast:
After changes in contrast:
It’s a big world out there! Show us what you see in a landscape.
Out my back door this past winter. Cold but beautiful.
Site of the first landing where first settlers came on shore from the James River. Since 1607 the river has eroded about 25 acres of this part of Jamestown Island. The original shoreline was close to the present edge of the river channel, a little more than 100 yards offshore from the seawall. Gives you chills to be standing in the same spot where the first settlers came on land.
Posted in ancestory, children, Family, historical, history, Jamestown, Photo101, travel, va
Tagged ancestors, family history, history, Jamestown, motivation, NaBloPoMo, photo101, traveling
Capture a fleeting moment and experiment with blur and movement.
That moment when you know it’s gone from being silly to completely over the top.
Posted in children, Family, fun, grandchildren, NaBloPoMo, Photo101, Photography101
Tagged children, Family, grandchildren, NaBloPoMo, photo101, photography
Today, capture an image of warmth, ideally using the sun as your source.
Not a lot of sun around the last couple of days until late in the day and definitely not any warmth from it. This is one from the last good warm day we had when Con could get out and play and have fun in the sun.
Posted in children, Fall, Family, fun, grandchildren, Photo101, sun, warm
Tagged children, farm, fun stuff, grandkids, memories, photo101, sun